Category Archives: Family Stories

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MAGNUS, RICHARD AND LEA’S STORY

“If I had to describe Noah’s Ark in three words? Gold Standard Care.” Living with an undiagnosed, life-threatening condition can make the world a scary place for three-year-old Magnus. Half of his short life has been spent in lockdown, and a lot of it in hospital. This has meant many unpleasant and painful experiences for

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Rose and Sophie’s Story

Rose has looked after her grandchildren, Ben and Sophie, since they were small. Ben died in 2014 from the same life-limiting genetic condition that affects Sophie. Aware that her granddaughter’s health is deteriorating, Rose’s dearest wish is for Sophie to have the end-of-life hospice care that wasn’t available to Ben.  “Hopefully, it will be there