Family Link Workers are usually the first point of contact for newly referred families. They remain the primary link between the family and the hospice and will maintain contact as the child and family’s needs change.
Reviews carried out at least annually allow services to be adjusted appropriately.
Family Link Workers offer practical and emotional support as needed, continuing after bereavement if required by the family.
Providing opportunities for peer support is also very important. The Family Link Team oversees regular Parent Groups in which concerns, experiences and information can be shared by parents and carers, providing mutual support to one another.
Our Bereavement Support service provides a continuing link with families for up to three years following the death of a child. During this time, families may attend our Butterfly Group, which provides peer support for parents and siblings, and/or receive home visits for individual support if they choose.
We also hold an annual Memory Day in which families come together to remember their children during a brief memorial ceremony, followed by memory making activities for the whole family.